World Hemophilia Day 2019: Reaching Out

April 12, 2019

April 17 is World Hemophilia Day and Precision BioLogic is proud to support this important World Federation of Hemophilia initiative. This year, the focus is on outreach and identification as the “first step to care." Visit worldhemophiliaday.org to share your stories of diagnosis along with efforts to increase outreach and identification.

Outreach and identification: the first step to diagnosis and effective treatment of hemophilia and other inherited bleeding disorders

About hemophilia and other bleeding disorders 

In people with bleeding disorders, the blood clotting process doesn’t work properly. As a result, people with bleeding disorders can bleed for longer than normal, and some may experience spontaneous bleeding into joints, muscles, or other parts of their bodies. Hemophilia affects approximately 1 in 10,000 people. People with hemophilia do not have enough clotting factor VIII or IX in their blood. The most common bleeding disorder is von Willebrand disease (VWD). It is generally less severe than other bleeding disorders. Many people with VWD may not know that they have the disorder because their bleeding symptoms are very mild. Rare clotting factor deficiencies are disorders in which one of several clotting factors is missing or not working properly. Finally, inherited platelet disorders are conditions in which platelets don’t work the way they should, resulting in a tendency to bleed or bruise.

About the World Federation of Hemophilia

For over 50 years, the World Federation of Hemophilia (WFH), an international not-for-profit organization, has provided global leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. Established in 1963, it is a global network of patient organizations in 140 countries and has official recognition from the World Health Organization.